A blog about my cancer journey from when I was diagnosed with metastatic malignant melanoma late September 2012, through tests, trials, treatments and all the tears that go with a journey of this nature.
Saturday - 2 February 2012
My sleeping patterns are borked, so badly borked. I slept 'til nearly noon, losing half my Saturday again. I had intended to go to the first Writer's Guild meeting of the year but woke up way too late for that. I also haven't been doing much writing beyond blogging anyway. I need to fix that but my priority is getting this blog up to date first. At least this is still writing and some days, the good days, I manage over 2000 words of blog posts too.
Friday - 1 February 2013
Short hot night for me. Not long after I'd finally drifted off in the combined heat of an overly warm night and an unwanted fever, the alarm rang waking me for my morning treatment pills. It rings at 06h00 and there are some nights/mornings when I wonder if I have reached that insomniacs threshold where it would actually better to continue to not sleep than it would be to actually fall asleep. Nevertheless, my sleeping patterns are falling more and even more out of whack with the heat, the meds, the side-effects and my own stubborn nature. I took the pills and this time fell straight back asleep.
Thursday - 31 January 2013
I woke late-ish this morning. Too much to do to risk any real attempt at clearing my sleep debt. I really wish this insomnia cycle would just bugger off and die in a corner some where.
We fetched another one of my CafePress deliveries from the Post Office while on route to get my hair done this afternoon.
Wednesday - 30 January 2013
Seriously?! Nice new linen, aired comforter and everything smelling super great, and I have to run another fever. My body hates me!
After sleeping off another, thankfully midler fever, mom and I went to do the weekly shop. We were back at Pick n Pay Tableview as it is convienent, even if the fresh stuff isn't that great. A stop at Paddocks Spar and Woolies showed that we should be doing more shopping at Woolies for fresh food, even if we don't get our SmartShopper points there.
Tuesday - 29 January 2013
Today I decided to focus on baby-things I can make for my friends. As I don't have kids but have a fair number of friends who do have kids, I put the question out on twitter "What do new 1st time moms actually need?" I know that they will get swamped with cute newborn outfits at their showers and as I was wanting to knit them baby sets, I needed to know how to size them.
Monday - 28 January 2013
Damn! Yesterday's scratchy throat morphed into 38C fever overnight. I self medicated and went back to sleep, only thinking of panicing the folks if it persisted more than a few hours or went up any further.
Three cheers for Tramacet! The fever broken and my temperature dropped back to a normal 36.5C. I was also feeling more human then with the scratchy throat almost gone.
Sunday - 27 January 2013
I slept in a bit this morning as I had a scratchy throat and was hoping it would disappear. I can't afford to get sick right now.
Mom and I have been wanting to find a new decent place to get fresh fruit and vegetables as we currently very less than impressed with the quality at Pick n Pay Tableview. They were good but now are sadly lacking. Raspberries that are rotten before the next day when the best before date was 3 days away, and vegetables that just tasted like water. Not the quality we needed.
Saturday - 26 January 2013
I battled to drag myself off Facebook this morning. I had things to do but somehow got stuck into WABing. I seriously needed to get on with adding content (read: blog posts) to my website and also get started on knitting the dragon-skin baby kimono I'd picked out as perfect for part of a baby set for my preggy friends.
I lost my phone at one point today. We've all seen the photos of cats sleeping on laptops. Well, mine was asleep on my phone. Small phone, big cat. Perhaps it was more like a warm water bottle for her than a heated bed. I don't know. And then of course, nothing quite says "thank you mom for the new cat litter" than frantic digging that results in a new layer of litter being deposited outside the box. Cats!
Friday - 25 January 2013
Apparently I'm still too flat about this, not showing much if any emotion but then again this is me. Realistic, cynical me. The person going through the treatment that is slowly crushing her hope for a normal life. The light at the end of the tunnel has for now been confirmed as not a speeding train and for that I'm actually grateful, even if I don't show it much.
Thursday - 24 January 2013
Lunchtime today we received the results of the CT Scan.
First from the trial doc who seemed happier with the results as figures for the study than for what they meant for me as the patient. "Blah. Blah. You're responding well. Better than many participants after this long on the trial." We ask again about having the tumour removed. She gets in a flap about how this could affect the trial, checks her notes and calming down, says that it wont be a problem. Yeah, her figures will still be good op or no op.